So TV glamour aside – the reality of living with Autism in the family.
I ended the weekend totally exhausted. Went to work determined to leave it all behind me and concentrate on a major project which culminates tomorrow – when we retire two old websites and divert all the users to the newer current one. Tomorrow is going to be a late one.
First thing I get is a hitch in that process. Second – and before I get to look at that – another site we have has a major problem! It’s main functionality stopped completely.
Deep breath! Put aside the planned work for today – deal with this.
A phone call from the wife – Our youngest -the one with Autism – who has to face a long journey on a bus to get to school every day and has been struggling with it – has finally snapped. Just like we had been warning them – and asking them to change his transport arrangements – to no avail. He has flipped out and hurt other children. Now the bus company are refusing to take him anymore. Not even to bring him home.
So now we have an issue. I now have to get these jobs done quicker as I have to leave early to pick him up from school.
So bang – get one done. Bang get the other one done – need to get them tested and live.
Another phone call from the school.
Now – he has had a fall at school and had been rushed to A&E.
Got to get this fix live! Now! And leave!
Raced over to get him as my wife is in the hospital for heart cardiac rehab.
By the time I get him home and safe my heart is racing and chest is hurting so bad I think I might be joining her pretty soon!
I would say I can’t take many more days like this but this is becoming normal for us.
Oh for the easier days!
I am just thankful I have an understanding employer.
Spent some time this evening looking back over very early posts on my blog – most of which were of a journal nature back then. It’s been quite emotional and informative. So much so that I have decided that I need to get back to it. In a few years time – if I read my blog now it will only have poems on it!
So you may see the odd one crop up now and then – though most I will probably keep private.
So to begin with anyway a quick precis of my life at it stands.
There have been a lot of changes.
Having lost one child we adopted – that was a stressful experience and a trying time. Now he is a loving member of our family – our son. Since he arrived we have also discovered he hs Autism. That’s a whole new cartload of stress – but at least knowing has helped and he is making good progress now.
All my old posts about my job were largely about the stress factor! This continued and continued until it reached a critical point. So now – and for other reasons too – I have a new job. I am three months in and so far – it has been the best decision of my life! So much better! A different world altogether. My only regret was that I didn’t do something sooner – but then this position was not there and it’s been ideal.
Finally, the other big thing in our lives at present is my wife’s impending surgery. It’s a major operation with hopefully life-changing – life improving consequences.
For all these reasons writing has taken a big back seat – but I plod on – as it’s the only outlet I have to keep me sane!
That and the occasional (very occasional) beer.
Let’s just see how long I keep up the journalling aspect this time 🙂
The question I find hard to answer – How many kids have you had. I have two – one by birth – one adopted. But we have had three – and whenever I say two it feels like we are betraying the memory of the one that was with us so briefly. Yet if you say three – that leads to many complicated conversations.
I have to add Alexander considers he has three brother’s as he also counts the one we lost at 7 weeks. In my mind we never has that one – we never saw him but I do see his point.
It’s a question that will probably never have a proper answer.